- McKenzie, K., Hilari, K. and Behn, N. (2024). An exploration of UK speech and language therapists' treatment and management of functional communication disorders: A mixed‐methods online survey. International Journal of Language & Communication Disorders. doi:10.1111/1460-6984.13113.
- Devane, N., Buxton, S., Fox, C., Marshall, J., Staunton, D., Whiddett, J. … Hilari, K. (2024). What Conversation Topics are Meaningful to People with Aphasia? A qualitative study. Aphasiology, 38(9), pp. 1550–1567. doi:10.1080/02687038.2024.2319364.
- Northcott, S., Baker, C., Thomas, S., Iddon, J., James, K. and Hilari, K. (2024). Wellbeing in stroke and aphasia (WISA): protocol for a feasibility study setting up an accessible service offering psychological therapy to people with post-stroke aphasia. Discover Psychology, 4(1). doi:10.1007/s44202-024-00195-6.
- Rotherham, A., Shrubsole, K., Croteau, C., Hilari, K., Wallace, H. and Wallace, S.J. (2024). Measuring successful conversations in couples with and without aphasia: A scoping review. International Journal of Language & Communication Disorders. doi:10.1111/1460-6984.13098.
- Hilari, K., Roper, A., Northcott, S. and Behn, N. (2024). Telehealth practice in aphasia: A survey of UK speech and language therapists, with a focus on assessment. International Journal of Language & Communication Disorders, 59(4), pp. 1296–1307. doi:10.1111/1460-6984.12996.
- Moss, B., Marshall, J., Woolf, C. and Hilari, K. (2024). Can a writing intervention using mainstream Assistive Technology software compensate for dysgraphia and support reading comprehension for people with aphasia? International Journal of Language & Communication Disorders, 59(3), pp. 1090–1109. doi:10.1111/1460-6984.12975.
- Morgan, S., Weir, K.A., Mulligan, K., Jacobs, S. and Hilari, K. (2024). Impact of COVID‐19 on clinical practice of UK‐based speech and language therapists working with school‐aged children with neurodisability and oropharyngeal dysphagia: A survey. Child: Care, Health and Development, 50(1). doi:10.1111/cch.13159.
- Devane, N., Behn, N., Marshall, J., Ramachandran, A., Wilson, S. and Hilari, K. (2023). The use of virtual reality in the rehabilitation of aphasia: a systematic review. Disability and Rehabilitation, 45(23), pp. 3803–3822. doi:10.1080/09638288.2022.2138573.
- Behn, N., Harrison, M., Brady, M.C., Breitenstein, C., Carragher, M., Fridriksson, J. … Hilari, K. (2023). Developing, monitoring, and reporting of fidelity in aphasia trials: core recommendations from the collaboration of aphasia trialists (CATs) trials for aphasia panel. Aphasiology, 37(11), pp. 1733–1755. doi:10.1080/02687038.2022.2037502.
- Sparks, F., Coffey, M., Dipper, L., Morgan, S. and Hilari, K. (2023). Tracheoesophageal Voice Therapy in Postlaryngectomy Rehabilitation: A Systematic Review. Journal of Voice. doi:10.1016/j.jvoice.2023.10.033.
- Sparks, F., Dipper, L., Coffey, M. and Hilari, K. (2023). Approaches to tracheoesophageal voice rehabilitation: a survey of the UK and Irish speech and language therapists’ current practice and beliefs. International Journal of Language & Communication Disorders, 58(5), pp. 1481–1495. doi:10.1111/1460-6984.12873.
- Wallace, S.J., Worrall, L., Rose, T.A., Alyahya, R.S.W., Babbitt, E., Beeke, S. … Dorze, G.L. (2023). Measuring communication as a core outcome in aphasia trials: Results of the ROMA‐2 international core outcome set development meeting. International Journal of Language & Communication Disorders, 58(4), pp. 1017–1028. doi:10.1111/1460-6984.12840.
- Brady, M.C., Ali, M., VandenBerg, K., Williams, L.J., Williams, L.R., Abo, M. … Harris Wright, H. (2022). Precision rehabilitation for aphasia by patient age, sex, aphasia severity, and time since stroke? A prespecified, systematic review-based, individual participant data, network, subgroup meta-analysis. International Journal of Stroke, 17(10), pp. 1067–1077. doi:10.1177/17474930221097477.
- Ramachandran, A., Hilari, K., Epstein, R., Devane, N. and Hirani, S.P. (2022). Voice Related Coping in Professional Voice Users-A Systematic Review. Journal of Voice. doi:10.1016/j.jvoice.2022.08.024.
- Brady, M.C., Ali, M., VandenBerg, K., Williams, L.J., Williams, L.R., Abo, M. … Wright, H.H. (2022). Complex speech-language therapy interventions for stroke-related aphasia: the RELEASE study incorporating a systematic review and individual participant data network meta-analysis. Health and Social Care Delivery Research, 10(28), pp. 1–272. doi:10.3310/rtlh7522.
- Northcott, S., Behn, N., Monnelly, K., Moss, B., Marshall, J., Thomas, S. … Hilari, K. (2022). “For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial. Disability and Rehabilitation, 44(18), pp. 5025–5037. doi:10.1080/09638288.2021.1922520.
- Moss, B., Behn, N., Northcott, S., Monnelly, K., Marshall, J., Simpson, A. … Hilari, K. (2022). “Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others. Disability and Rehabilitation, 44(18), pp. 5015–5024. doi:10.1080/09638288.2021.1922519.
- Exell, R., Hilari, K. and Behn, N. (2022). Interventions that support adults with brain injuries, learning disabilities and autistic spectrum disorders in dating or romantic relationships: a systematic review. Disability and Rehabilitation, 44(12), pp. 2567–2580. doi:10.1080/09638288.2020.1845824.
- Ali, M., Soroli, E., Jesus, L.M.T., Cruice, M., Isaksen, J., Visch-Brink, E. … Brady, M.C. (2022). An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists. Aphasiology, 36(4), pp. 555–574. doi:10.1080/02687038.2021.1957081.
- Williams, L.R., Ali, M., VandenBerg, K., Williams, L.J., Abo, M., Becker, F. … Brady, M.C. (2022). Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke. Aphasiology, 36(4), pp. 513–533. doi:10.1080/02687038.2021.1897081.
- Brady, M.C., Ali, M., VandenBerg, K., Williams, L.J., Williams, L.R., Abo, M. … Wright, H.H. (2022). Dosage, Intensity, and Frequency of Language Therapy for Aphasia: A Systematic Review–Based, Individual Participant Data Network Meta-Analysis. Stroke, 53(3), pp. 956–967. doi:10.1161/strokeaha.121.035216.
- Breitenstein, C., Hilari, K., Menahemi-Falkov, M., L. Rose, M., Wallace, S.J., Brady, M.C. … Willmes, K. (2022). Operationalising treatment success in aphasia rehabilitation. Aphasiology. doi:10.1080/02687038.2021.2016594.
- Flood, C., Behn, N., Marshall, J., Simpson, A., Northcott, S., Thomas, S. … Hilari, K. (2022). A pilot economic evaluation of a feasibility trial for SUpporting wellbeing through PEeR-Befriending (SUPERB) for post-stroke aphasia. Clinical Rehabilitation pp. 26921552110635–26921552110635. doi:10.1177/02692155211063554.
- Exell, R., Hilari, K. and Behn, N. (2021). Current practices and beliefs regarding supporting dating skills in rehabilitation for traumatic brain injury: a survey study. Brain Injury, 35(11), pp. 1358–1370. doi:10.1080/02699052.2021.1970805.
- Northcott, S., Simpson, A., Thomas, S., Barnard, R., Burns, K., Hirani, S.P. … Hilari, K. (2021). “Now I Am Myself”: Exploring How People With Poststroke Aphasia Experienced Solution-Focused Brief Therapy Within the SOFIA Trial. Qualitative Health Research, 31(11), pp. 2041–2055. doi:10.1177/10497323211020290.
- Behn, N., Moss, B., McVicker, S., Roper, A., Northcott, S., Marshall, J. … Hilari, K. (2021). SUpporting wellbeing through PEeR-Befriending (SUPERB) feasibility trial: fidelity of peer-befriending for people with aphasia. BMJ Open, 11(8). doi:10.1136/bmjopen-2020-047994.
- Hilari, K., Behn, N., James, K., Northcott, S., Marshall, J., Thomas, S. … Goldsmith, K. (2021). Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: A feasibility randomised controlled trial. Clinical Rehabilitation, 35(8), pp. 1151–1163. doi:10.1177/0269215521995671.
- Northcott, S., Thomas, S., James, K., Simpson, A., Hirani, S., Barnard, R. … Hilari, K. (2021). Solution Focused Brief Therapy in Post-Stroke Aphasia (SOFIA): feasibility and acceptability results of a feasibility randomised wait-list controlled trial. BMJ Open, 11(8). doi:10.1136/bmjopen-2021-050308.
- Moss, B., Northcott, S., Behn, N., Monnelly, K., Marshall, J., Thomas, S. … Hilari, K. (2021). ‘Emotion is of the essence. … Number one priority’: A nested qualitative study exploring psychosocial adjustment to stroke and aphasia. International Journal of Language & Communication Disorders, 56(3), pp. 594–608. doi:10.1111/1460-6984.12616.
- Ali, M., VandenBerg, K., Williams, L.J., Williams, L.R., Abo, M., Becker, F. … Brady, M.C. (2021). Predictors of Poststroke Aphasia Recovery. Stroke. doi:10.1161/strokeaha.120.031162.
- Behn, N., Francis, J., Togher, L., Hatch, E., Moss, B. and Hilari, K. (2021). Description and Effectiveness of Communication Partner Training in TBI: A Systematic Review. Journal of Head Trauma Rehabilitation, 36(1), pp. 56–71. doi:10.1097/htr.0000000000000580.
- Hilari, K. (2020). Letter to the Editor re: Ahmadi, A., Tohidast, S. A., Mansuri, B., Kamali, M., & Krishnan, G. Acceptability, reliability, and validity of the Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39) across languages: a systematic review. Clinical Rehabilitation, 2017;31:1201-1214. Clinical Rehabilitation, 34(11), pp. 1420–1421. doi:10.1177/0269215520945661.
- Marshall, J., Devane, N., Talbot, R., Caute, A., Cruice, M., Hilari, K. … Wilson, S. (2020). A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality. PLOS ONE, 15(9). doi:10.1371/journal.pone.0239715.
- Bragstad, L.K., Hjelle, E.G., Zucknick, M., Sveen, U., Thommessen, B., Bronken, B.A. … Kirkevold, M. (2020). The effects of a dialogue-based intervention to promote psychosocial well-being after stroke: a randomized controlled trial. Clinical Rehabilitation, 34(8), pp. 1056–1071. doi:10.1177/0269215520929737.
- Lee, M.T., Govender, R., Roy, P.J., Vaz, F. and Hilari, K. (2020). Factors affecting swallowing outcomes after total laryngectomy: Participant self‐report using the swallowing outcomes after laryngectomy questionnaire. Head & Neck, 42(8), pp. 1963–1969. doi:10.1002/hed.26132.
- Behn, N., Francis, J.J., Power, E., Hatch, E. and Hilari, K. (2020). Communication partner training in traumatic brain injury: a UK survey of Speech and Language Therapists’ clinical practice. Brain Injury, 34(7), pp. 934–944. doi:10.1080/02699052.2020.1763465.
- (2020). Communicating simply, but not too simply: Reporting of participants and speech and language interventions for aphasia after stroke. International Journal of Speech-Language Pathology, 22(3), pp. 302–312. doi:10.1080/17549507.2020.1762000.
- Brady, M.C., Ali, M., VandenBerg, K., Williams, L.J., Williams, L.R., Abo, M. … Wright, H.H. (2020). RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia. Aphasiology, 34(2), pp. 137–157. doi:10.1080/02687038.2019.1643003.
- Efstratiadou, E.-.A., Papathanasiou, I., Holland, R., Varlokosta, S. and Hilari, K. (2019). Efficacy of elaborated semantic features analysis in Aphasia: a quasi-randomised controlled trial. Aphasiology, 33(12), pp. 1482–1503. doi:10.1080/02687038.2019.1571558.
- Hilari, K., Behn, N., Marshall, J., Simpson, A., Thomas, S., Northcott, S. … Goldsmith, K. (2019). Adjustment with aphasia after stroke: study protocol for a pilot feasibility randomised controlled trial for SUpporting wellbeing through PEeR Befriending (SUPERB). Pilot and Feasibility Studies, 5(1). doi:10.1186/s40814-019-0397-6.
- Bharal, M., Morgan, S., Husain, T., Hilari, K., Morawiec, C., Harrison, K. … Culkin, A. (2019). Volume based feeding versus rate based feeding in the critically ill: A UK study. Journal of the Intensive Care Society, 20(4), pp. 299–308. doi:10.1177/1751143719847321.
- Northcott, S., Simpson, A., Thomas, S.A., Hirani, S.P., Flood, C. and Hilari, K. (2019). Solution Focused brief therapy In post-stroke Aphasia (SOFIA Trial): protocol for a feasibility randomised controlled trial. AMRC Open Research, 1, pp. 11–11. doi:10.12688/amrcopenres.12873.2.
- Northcott, S., Simpson, A., Thomas, S.A., Hirani, S.P., Flood, C. and Hilari, K. (2019). SOlution Focused brief therapy In post-stroke Aphasia (SOFIA Trial): protocol for a feasibility randomised controlled trial. AMRC Open Research, 1, pp. 11–11. doi:10.12688/amrcopenres.12873.1.
- Wallace, S.J., Worrall, L., Rose, T., Le Dorze, G., Breitenstein, C., Hilari, K. … Webster, J. (2019). A core outcome set for aphasia treatment research: The ROMA consensus statement. International Journal of Stroke, 14(2), pp. 180–185. doi:10.1177/1747493018806200.
- Pritchard, M., Hilari, K., Cocks, N. and Dipper, L. (2018). Psychometric properties of discourse measures in aphasia: acceptability, reliability, and validity. International Journal of Language & Communication Disorders, 53(6), pp. 1078–1093. doi:10.1111/1460-6984.12420.
- Northcott, S. and Hilari, K. (2018). “I’ve got somebody there, someone cares”: what support is most valued following a stroke? Disability and Rehabilitation, 40(20), pp. 2439–2448. doi:10.1080/09638288.2017.1337242.
- Hilari, K., Behn, N., Marshall, J., Simpson, A., Northcott, S., Thomas, S. … McVicker, S. (2018). Blinding participants and assessors in a feasibility randomised controlled trial of peer-befriending for people with aphasia post-stroke. Aphasiology, 32(sup1), pp. 88–89. doi:10.1080/02687038.2018.1489121.
- Behn, N., Hilari, K., Marshall, J., Simpson, A., Northcott, S., Thomas, S. … McVicker, S. (2018). SUpporting well-being through PEeR-Befriending (SUPERB) trial: an exploration of fidelity in peer-befriending for people with aphasia. Aphasiology, 32(sup1), pp. 21–23. doi:10.1080/02687038.2018.1489120.
- Efstratiadou, E.A., Papathanasiou, I., Holland, R., Archonti, A. and Hilari, K. (2018). A Systematic Review of Semantic Feature Analysis Therapy Studies for Aphasia. Journal of Speech, Language, and Hearing Research, 61(5), pp. 1261–1278. doi:10.1044/2018_JSLHR-L-16-0330.
- Northcott, S., Hirani, S.P. and Hilari, K. (2018). A Typology to Explain Changing Social Networks Post Stroke. The Gerontologist, 58(3), pp. 500–511. doi:10.1093/geront/gnx011.
- Hilari, K., Galante, L., Huck, A., Pritchard, M., Allen, L. and Dipper, L. (2018). Cultural adaptation and psychometric testing of The Scenario Test UK for people with aphasia. International Journal of Language and Communication Disorders. doi:10.1111/1460-6984.12379.
- Northcott, S., Simpson, A., Moss, B., Ahmed, N. and Hilari, K. (2018). Supporting people with aphasia to ‘settle into a new way to be’: speech and language therapists’ views on providing psychosocial support. International Journal of Language & Communication Disorders, 53(1), pp. 16–29. doi:10.1111/1460-6984.12323.
- Rose, M.L., Ali, M., Elders, A., Godwin, J., Sandri, A.K., Williams, L.J. … Brady, M.C. (2018). Tidier descriptions of speech and language therapy interventions for people with aphasia; consensus from the release collaboration. Aphasiology, 32, pp. 183–186. doi:10.1080/02687038.2018.1487021.
- Pritchard, M., Hilari, K., Cocks, N. and Dipper, L. (2017). Reviewing the quality of discourse information measures in aphasia. International Journal of Language & Communication Disorders, 52(6), pp. 689–732. doi:10.1111/1460-6984.12318.
- Kladouchou, V., Papathanasiou, I., Efstratiadou, E.A., Christaki, V. and Hilari, K. (2017). Treatment integrity of elaborated semantic feature analysis aphasia therapy delivered in individual and group settings. International Journal of Language & Communication Disorders, 52(6), pp. 733–749. doi:10.1111/1460-6984.12311.
- Hilari, K. and Northcott, S. (2017). “Struggling to stay connected”: comparing the social relationships of healthy older people and people with stroke and aphasia. Aphasiology, 31(6), pp. 674–687. doi:10.1080/02687038.2016.1218436.
- Northcott, S., Simpson, A., Moss, B., Ahmed, N. and Hilari, K. (2017). How do speech-and-language therapists address the psychosocial well-being of people with aphasia? Results of a UK online survey. Int J Lang Commun Disord, 52(3), pp. 356–373. doi:10.1111/1460-6984.12278.
- Botting, N., Dipper, L. and Hilari, K. (2017). The effect of social media promotion on academic article uptake. Journal of the Association for Information Science and Technology, 68(3), pp. 795–800. doi:10.1002/asi.23704.
- McKean, C., Bloch, S., Hilari, K. and Botting, N. (2016). Editorial. International journal of language & communication disorders. doi:10.1111/1460-6984.12304.
- Marshall, J., Booth, T., Devane, N., Galliers, J., Greenwood, H., Hilari, K. … Woolf, C. (2016). Evaluating the Benefits of Aphasia Intervention Delivered in Virtual Reality: Results of a Quasi-Randomised Study. PLOS ONE, 11(8). doi:10.1371/journal.pone.0160381.
- Northcott, S., Moss, B., Harrison, K. and Hilari, K. (2016). A systematic review of the impact of stroke on social support and social networks: associated factors and patterns of change. Clinical Rehabilitation, 30(8), pp. 811–831. doi:10.1177/0269215515602136.
- Northcott, S., Marshall, J. and Hilari, K. (2016). What factors predict who will have a strong social network following a stroke? Journal of Speech Language and Hearing Research. doi:10.1044/2016_JSLHR-L-15-0201.
- van Ewijk, L., Versteegde, L., Raven-Takken, E. and Hilari, K. (2016). Measuring quality of life in Dutch people with aphasia: development and psychometric evaluation of the SAQOL-39NL. Aphasiology. doi:10.1080/02687038.2016.1168919.
- Govender, R., Lee, M.T., Drinnan, M., Davies, T., Twinn, C. and Hilari, K. (2016). Psychometric evaluation of the Swallowing Outcomes After Laryngectomy (SOAL) patient‐reported outcome measure. Head & Neck, 38(S1). doi:10.1002/hed.24291.
- Harding, C., Frank, L., Botting, N. and Hilari, K. (2015). Assessment and management of infant feeding. Infant, 11(3), pp. 85–89.
- Hilari, K., Cruice, M., Sorin-Peters, R. and Worrall, L. (2015). Quality of Life in Aphasia: State of the Art. Folia Phoniatrica et Logopaedica, 67(3), pp. 114–118. doi:10.1159/000440997.
- Northcott, S., Burns, K., Simpson, A. and Hilari, K. (2015). ‘Living with Aphasia the Best Way I Can': A Feasibility Study Exploring Solution-Focused Brief Therapy for People with Aphasia. Folia Phoniatrica et Logopaedica, 67(3), pp. 156–167. doi:10.1159/000439217.
- Hilari, K., Klippi, A., Constantinidou, F., Horton, S., Penn, C., Raymer, A. … Worrall, L. (2015). An International Perspective on Quality of Life in Aphasia: A Survey of Clinician Views and Practices from Sixteen Countries. Folia Phoniatrica et Logopaedica, 67(3), pp. 119–130. doi:10.1159/000434748.
- Harding, C., Frank, L., Van Someren, V., Hilari, K. and Botting, N. (2014). How does non-nutritive sucking support infant feeding? Infant Behavior and Development, 37(4), pp. 457–464. doi:10.1016/j.infbeh.2014.05.002.
- Winkler, M., Bedford, V., Northcott, S. and Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia? Aphasiology. doi:10.1080/02687038.2014.928665.
- Fotiadou, D., Northcott, S., Chatzidaki, A. and Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships? Aphasiology. doi:10.1080/02687038.2014.928664.
- Northcott, S. and Hilari, K. (2013). Stroke Social Network Scale: Development and psychometric evaluation of a new patient-reported measure. Clinical Rehabilitation, 27(9), pp. 823–833. doi:10.1177/0269215513479388.
- Hilari, K. and Boreham, L.-.D. (2013). Visual analogue scales in stroke: What can they tell us about health-related quality of life? BMJ Open, 3(9). doi:10.1136/bmjopen-2013-003309.
- Ignatiou, M., Christaki, V., Chelas, E.N., Efstratiadou, E.A. and Hilari, K. (2012). Agreement between People with Aphasia and Their Proxies on Health-Related Quality of Life after Stroke, Using the Greek SAQOL-39g. Psychology, 3(9), pp. 686–690. doi:10.4236/psych.2012.39104.
- Caute, A., Northcott, S., Clarkson, L., Pring, T. and Hilari, K. (2012). Does mode of administration affect health-related quality-of-life outcomes after stroke? Int J Speech Lang Pathol. doi:10.3109/17549507.2012.663789.
- Hilari, K., Needle, J.J. and Harrison, K. (2012). What are the important factors in health-related quality of life for people with aphasia? A systematic review. Archives of Physical Medicine and Rehabilitation, In press.
- Efstratiadou, E.A., Chelas, E.N., Ignatiou, M., Christaki, V., Papathanasiou, I. and Hilari, K. (2012). Quality of life after stroke: evaluation of the Greek SAQOL-39g. Folia Phoniatrica et Logopaedica, 64(4). doi:10.1159/000340014.
- Northcott, S. and Hilari, K. (2011). Why do people lose their friends after a stroke? Int J Lang Commun Disord, 46(5), pp. 524–534. doi:10.1111/j.1460-6984.2011.00079.x.
- Hilari, K. (2011). The impact of stroke: are people with aphasia different to those without? Disabil Rehabil, 33(3), pp. 211–218. doi:10.3109/09638288.2010.508829.
- Lee, M.T., Gibson, S. and Hilari, K. (2010). Gender differences in health-related quality of life following total laryngectomy. Int J Lang Commun Disord, 45(3), pp. 287–294. doi:10.3109/13682820902994218.
- Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R.D., Chataway, J. … Ames, D. (2010). Psychological distress after stroke and aphasia: the first six months. Clin Rehabil, 24(2), pp. 181–190. doi:10.1177/0269215509346090.
- Kerr, J., Hilari, K. and Litosseliti, L. (2010). Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting. APHASIOLOGY, 24(10), pp. 1170–1196. doi:10.1080/02687030903383738.
- Lee, M.T., Gibson, S. and Hilari, K. (2009). Gender differences in health-related quality of life following total laryngectomy. Int J Lang Commun Disord p. 1. doi:10.1080/13682820902994218.
- Hilari, K., Lamping, D.L., Smith, S.C., Northcott, S., Lamb, A. and Marshall, J. (2009). Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population. Clin Rehabil, 23(6), pp. 544–557. doi:10.1177/0269215508101729.
- Hilari, K. and Byng, S. (2009). Health-related quality of life in people with severe aphasia. Int J Lang Commun Disord, 44(2), pp. 193–205. doi:10.1080/13682820802008820.
- Kartsona, A. and Hilari, K. (2007). Quality of life in aphasia: Greek adaptation of the stroke and aphasia quality of life scale - 39 item (SAQOL-39). Eura Medicophys, 43(1), pp. 27–35.
- Hilari, K., Owen, S. and Farrelly, S.J. (2007). Proxy and self-report agreement on the Stroke and Aphasia Quality of Life Scale-39. Journal of Neurology, Neurosurgery and Psychiatry, 78(10), pp. 1072–1075.
- Hilari, K. and Northcott, S. (2006). Social support in people with chronic aphasia. APHASIOLOGY, 20(1), pp. 17–36. doi:10.1080/02687030500279982.
- Hilari, K. (2005). Choosing relevant outcomes for aphasia: A commentary on Ross and Wertz, "Advancing appraisal: Aphasia and the WHO". Aphasiology, 19(9), pp. 870–875.
- Hilari, K., Byng, S., Lamping, D.L. and Smith, S.C. (2003). Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): evaluation of acceptability, reliability, and validity. Stroke, 34(8), pp. 1944–1950. doi:10.1161/01.STR.0000081987.46660.ED.
- Hilari, K., Wiggins, R.D., Roy, P., Byng, S. and Smith, S.C. (2003). Predictors of health-related quality of life (HRQL) in people with chronic aphasia. Aphasiology, 17(4), pp. 365–381. doi:10.1080/02687030244000725.
- Hilari, K. and Byng, S. (2001). Measuring quality of life in people with aphasia: the Stroke Specific Quality of Life Scale. Int J Lang Commun Disord, 36 Suppl, pp. 86–91. doi:10.3109/13682820109177864.
- Hilari, K., Byng, S. and Pring, T. (2001). Measuring well-being in aphasia: The GHQ-28 versus the NHP. International Journal of Speech-Language Pathology, 3(2), pp. 129–137. doi:10.3109/14417040109003719.
Contact details
Address
Northampton Square
London EC1V 0HB
United Kingdom
About
Overview
Katerina is a Professor of Acquired Communication Disorders. She is a Speech and Language Therapist with a background in Psychology and she specialises in aphasia and the impact of aphasia on people's lives. Katerina leads the Trials for Aphasia Panel of the Collaboration of Aphasia Trialists and is on the Board of Trustees of Aphasia Re-Connect. Katerina joined City, University of London in 2002. She previously worked at the Royal Free Hospital in London.
Background
Katerina studied Philosophy, Education and Psychology at the University of Athens before her post-graduate studies in Speech and Language Therapy in the UK. She worked in the NHS for St Mary's Hospital in Paddington and the Royal Free in North London. Her early research focused on the assessment of health-related quality of life in people with stroke and aphasia. She has developed a questionnaire, the Stroke and Aphasia Quality of Life scale (SAQOL-39) for use in clinical practice and research. Katerina's current research is exploring interventions to address the impact of aphasia and other communication disorders on people's well-being, social participation and quality of life.
Refereeing / Reviewing activities
Grant Panel member for The Stroke Association and grant proposal referee for the NIHR Health Technology Assessment (HTA); NIHR Research for Patient Benefit, and other funding bodies.
Previous Editor in Chief and current Advisory Editorial Board member of the International Journal of Language and Communication Disorders.
Memberships of committees
- Lead, Trials for Aphasia Panel, Collaboration of Aphasia Trialists (CATs), Jan 2020 – present
Memberships of professional organisations
- Trustee, Aphasia Re-Connect, Board of Trustees, Jul 2018 – present
- Member (RC0011164), Royal College of Speech and Language Therapists
- Member (SL05481), The Health Professions Council
Awards
- Times Higher Education (2016) Shortlisted for The Times Higher Education Award for Outstanding Research Supervisor of the Year
- City, University of London (2015) Vice-Chancellor’s Award for Outstanding Doctoral Supervision
- City, University of London (2011) City University London Staff Prize for Excellence in Research
- City, University of London (2010) Teaching Recognition Prize to the Division of Language and Communication Science Professional Studies Team
Research
Research overview
Katerina's research is focused on two main areas:
1. The long-term impact and psychosocial aspects of adult neurological conditions, with an emphasis on stroke and aphasia. This covers both exploration of this impact, with current projects looking at ways to support emotional and social well-being for people with aphasia, and also methodological issues, such as instrument development and adaptation for people with aphasia.
2. The effectiveness of speech and language therapy and other interventions on activities, participation and quality of life, in particular for people with aphasia.
Research areas
- Promoting psychosocial wellbeing in people with stroke and aphasia
- Effectiveness of aphasia therapy on activities, participation and quality of life
- Quality of life assessment in people with communication disabilities
- Stroke and aphasia outcomes research
- Development, psychometric testing and cultural adaptation of quality of life and patient reported outcome measures
- Social network and social support after stroke
Research students
Freya Sparks
Attendance: Feb 2021 – present, full-time
Thesis title: Advancing practice in voice rehabilitation with VITAL: a novel Voice Therapy Approach for people with Laryngectomy
Role: 1st Supervisor
Sally Morgan
Attendance: Oct 2020 – present, part-time
Thesis title: The SEEM study: Safe, Efficient and Enjoyable Mealtimes: Creating a toolkit for families of children who need assistance with eating and drinking - a multi-method investigation.
Role: 1st Supervisor
Niamh Devane
Attendance: Oct 2019 – Apr 2023, full-time
Thesis title: A feasibility randomised controlled trial of adapted Semantic Feature Analysis delivered in EVA Park.
Role: 1st Supervisor
Aparna Ramachandran
Attendance: Feb 2019 – present, full-time
Thesis title: SELF-REPORTED VOICE PROBLEMS AND COPING STYLES IN WESTERN CLASSICAL AND CARNATIC SINGERS: A MIXED METHODS STUDY
Role: 2nd Supervisor
Vasiliki Kladouchou
Attendance: Oct 2017 – May 2021, full-time
Thesis title: Psychosocial wellbeing in young adults with communication difficulties: Acquired versus Developmental Language Impairment
Role: 1st Supervisor
Further information: This project explores how language and cognitive factors affect psychosocial wellbeing in two understudied groups of young adults: those with diagnosed acquired language impairment/aphasia (ALI) and those with diagnosed developmental language impairment (DLI). The project aims to answer the following questions: 1) Is psychosocial wellbeing different between young adults with DLI and ALI, and is it poorer in comparison to typically developing young adults? 2) Do language and cognitive variables such as non-verbal ability and executive functioning contribute to predicting psychosocial outcomes in young adults with ALI and DLI? 3) Are potential group differences in psychosocial outcomes between young adults with ALI and DLI entirely accounted for by language and cognitive variables, or do they remain once such variables have been controlled?
Becky Moss
Attendance: Oct 2012 – Jun 2017
Thesis title: Investigating the impact of using assistive technologies on communication and social participation for people with aphasia: a mixed methods, case series study
Role: 1st Supervisor
Further information: - 1st supervisor
- 2nd supervisor: Dr Celia Woolf
- 3rd supervisor: Professor Jane Marshall
- This project delivered and evaluated a training programme in which ten people with aphasia were taught to use assistive technologies including voice recognition software and text-to-speech software, with the aim of improving their ability to communicate through written language. Training was one-to-one, for approximately one hour a week, for 10-15 weeks, and activities were tailored to address individual participants' goals such as correspondence through emails or letters.
Eva Efstratiadou
Attendance: Oct 2012 – Dec 2017
Thesis title: Investigation of different therapy approaches for aphasia in the Greek language
Role: 1st Supervisor
Further information: - 1st Supervisor
- 2nd supervisor: Dr Ilias Papathanasiou (external)
- This study investigates the effectiveness of speech and language therapy, delivered through different approaches for Greek speaking people with aphasia in Greece. Two different therapy approaches are examined: a) direct (one-to-one therapy) and b) combination therapy (one-to-one and group therapy). The study explores the outcomes of each therapy approach and which one, if any, has the greatest positive effects on quality of life.
Madeleine Pritchard
Attendance: Oct 2012 – Jul 2016
Thesis title: Discourse measures for describing coherence and language in aphasia
Role: 2nd Supervisor
Lara Galante
Attendance: Oct 2012 – May 2015, full-time
Thesis title: Cultural adaptation and psychometric testing of the Scenario Test for use in the UK, with insight on cognitive aspects of independent communication
Role: 1st Supervisor
Further information: - 1st supervisor
- 2nd supervisor: Dr Lucy Dipper
- This project was testing the psychometric properties of The Scenario Test for use in the UK. The Scenario Test was originally developed in The Netherlands and it is a functional communication test for people with aphasia that taps on all forms of communication, such as speech, gesture, drawing and writing. Furthermore, the project investigated the relationship between cognitive factors ('executive attention') and the ability to independently communicate using both verbal and non-verbal methods.
Ruth Deutsch
Attendance: Oct 2010 – Sep 2017, part-time
Thesis title: Reliability, Validity and Educational Use of the Cognitive Abilities Profile
Role: 2nd Supervisor
Further information: - 3rd supervisor
- 1st supervisor: Dr Nicola Botting
- Ruth is an educational psychologist and her PhD examines the reliability, validity and perceptions of the Cognitive Abilities Profile (CAP). The CAP is an educational consultation tool for identifying strengths and weaknesses in children with educational needs.
Celia Harding
Attendance: Oct 2008 – Oct 2015
Thesis title: Unmet needs of children with feeding difficulties
Role: 2nd Supervisor
Further information: - 2nd supervisor
- 1st supervisor: Dr Nicola Botting
- This project comprised a series of studies on early feeding and communication, including a randomised controlled trial on the effectiveness of non-nutritive sucking as a tool for enabling transition to full oral feeding with premature babies.
Sarah Northcott
Attendance: Feb 2006 – Jul 2013, part-time
Thesis title: Social support after a stroke
Role: 1st Supervisor
Further information: - 1st supervisor
- 2nd supervisor: Professor Jane Marshall
- External advisor: Dr Jane Ritchie
- This study looked at what happens to social networks and patterns of social support after stroke. It was a repeated-measures cohort study of people admitted to two NHS hospitals with stroke within a 15 month period, with questionnaires administered at 2 weeks, 3 months, and 6 months post stroke. 87 participants were recruited, with 82% follow up rate to 6 months. In-depth qualitative interviews were also carried out 8-15 months post stroke with 29 participants, exploring why changes were occurring and how they were perceived.
Publications
Publications by category
Book
- Hilari, K. and Botting, N. (2011). The impact of communication disability across the lifespan. Hilari, K. and Botting, N. (Eds.), London: J&R Press. ISBN 978-1-907826-03-0.
Chapters (7)
- Marshall, J., Hilari, K., Cruice, M. and Harrison, K. (2019). Communication. (pp. 153–175). Wiley. ISBN 978-1-119-11145-0.
- Hilari, K. (2011). Aphasia. In Hilari, K. and Botting, N. (Eds.), The impact of communication disability across the lifespan. (pp. 147–160). London: J&R Press. ISBN 978-1-907826-03-0.
- Hilari, K. and Cruice, M. (2011). Quality of life approach in aphasia. In Papathanasiou, I., Coppens, P. and Potagas, C. (Eds.), Aphasia and Related Neurogenic Communication Disorders Jones & Bartlett Publishers. ISBN 978-0-7637-7100-3.
- Herman, R.C. and Morgan, G. (2010). Deafness, language & communication. In Botting, N. and Hilari, K. (Eds.), The Impact of Communication Disability Across the Lifespan London, England: J & R Press. ISBN 978-1-907826-03-0.
- Marshal, J., Cruice, M. and Hilari, K. (2010). Communication. In Williams, J., Perry, L. and Watkins, C. (Eds.), Acute Stroke Nursing (pp. 184–204). Chichester: Wiley-Blackwell.
- Marshall, J., Hilari, K., Cruice, M. and Harrison, K. Acute Stroke Nursing (second edition). In Williams, J., Perry, L. and Watkins, C. (Eds.), Acute Stroke Nursing Wiley-Blackwell.
- Botting, N. and Hilari, K. Communication disability across the lifespan: the importance of documenting and sharing kholedge about wider impacts. In Hilari, K. and Botting, N. (Eds.), The impact of communication disability across the lifespan (pp. 1–5). London: J&R Press. ISBN 978-1-907826-03-0.
Conference papers and proceedings (15)
- Morgan, S., Mulligan, K., Weir, K.A. and Hilari, K. (2023). The clinical practice of Speech & Language Therapists working with school-aged children with dysphagia: A survey. Research into Practice 29 June, City, University of London.
- (2023). 11th ESSD Congress, 2021. doi:10.1007/s00455-022-10456-y
- Morgan, S., Hilari, K., Mulligan, K., Sparks, F. and Weir, K.A. (2022). Mealtime recommendation interventions provided to carers of school-aged children who have neurodevelopmental disability and oropharyngeal dysphagia: A systematic literature review. QUAD Conference: Pediatric Dysphagia 10-11 October, Cincinnati, USA.
- Morgan, S., Mulligan, K., Weir, K.A. and Hilari, K. (2022). A survey examining the clinical practice of UK Speech & Language Therapists working with school-aged children with neurodevelopmental disability and oropharyngeal dysphagia requiring mealtime assistance. QUAD Conference: Pediatric Dysphagia 10-11 October, Cincinnati, USA.
- Morgan, S., Mulligan, K., Weir, K.A. and Hilari, K. (2022). What is the clinical practice of UK Speech & Language Therapists working with school-aged children with neurodisability and oropharyngeal dysphagia who require mealtime assistance: A UK survey. European Society for Swallowing Disorders (ESSD) Congress 14-16 September, Leuven, Belgium.
- Sparks, F., Coffey, M., Dipper, L., Morgan, S. and Hilari, K. (2022). A systematic review of tracheoesophageal voice therapy in post laryngectomy rehabilitation. British Association of Head and Neck Oncologists (BAHNO) Annual Scientific Meeting 13 May, London, UK.
- Morgan, S., Mulligan, K., Weir, K. and Hilari, K. (2021). UK Speech & Language Therapists working in school-aged children dysphagia practice. Impact of Covid19 on clinical practice: A survey. European Society for Swallowing Disorders Conference 4-6 November, Online. doi:10.1007/s00455-022-10456-y
- (2020). ESO-WSO 2020 Joint Meeting Abstracts. doi:10.1177/1747493020963387
- Hilari, K., Behn, N., Marshall, J., Simpson, A., Northcott, S., Thomas, S. … Goldsmith, K. (2020). ADJUSTMENT WITH APHASIA AFTER STROKE: A PILOT FEASIBILITY RANDOMISED CONTROLLED TRIAL FOR SUPPORTING WELLBEING THROUGH PEER-BEFRIENDING (SUPERB).
- Behn, N., Francis, J., Togher, L., Hatch, E. and Hilari, K. (2019). A Systematic Review of Training for Communication Partners of People with Traumatic Brain Injury (TBI).
- Hilari, K., Behn, N., Marshall, J., Simpson, A., Thomas, S., Flood, C. … McVicker, S. (2019). Adjustment Post-Stroke and Aphasia: Protocol for the SUpporting Well-Being Through PEeR-Befriending (SUPERB Trial). doi:10.1080/02699052.2019.1608749
- (2019). Accepted Abstracts from the International Brain Injury Association’s 13th World Congress on Brain Injury. doi:10.1080/02699052.2019.1608749
- Northcott, S., Thomas, S., Simpson, A., Burns, K., Hirani, S.P., Moss, B. … Hilari, K. (2018). How acceptable is solution focused brief therapy (SFBT) to people with severe aphasia?
- (2016). UK Stroke forum abstracts. doi:10.1177/1747493016669275
- Hilari, K. and Northcott, S. (2004). SOCIAL SUPPORT AND HRQL IN PEOPLE WITH APHASIA.
Journal articles (93)
Posters (5)
- Morgan, S., Mulligan, K., Weir, K.A. and Hilari, K. Safe Efficient and Enjoyable Mealtimes (SEEM Study): Creating a toolkit for families of children who need assistance with eating and drinking – a multi-method investigation. UK Swallowing Research Group 2024, 2024.
- Morgan, S., Weir, K.A., Mulligan, K. and Hilari, K. The SEEM Study: Safe Efficient and Enjoyable Mealtimes: Creating a toolkit for families of children who need assistance with eating and drinking – an observational study protocol. Europeean Society of Swallowing Disorders Congress 2023, 2023.
- Morgan, S., Hilari, K., Mulligan, K., Sparks, F. and Weir, K.A. A systematic review of mealtime recommendation interventions provided to carers of school-aged children who have neurodisability and oropharyngeal dysphagia. European Society for Swallowing Disorders (ESSD) Congress, 2022.
- Sparks, F., Morgan, S., Coffey, M., Dipper, L. and Hilari, K. A systematic review of tracheoesophageal voice therapy in post laryngectomy rehabilitation. ESLA Congress: Saltzberg, Austria., 2022.
- Sparks, F., Coffey, M., Dipper, L., Morgan, S. and Hilari, K. A systematic review of tracheoesophageal voice therapy in post laryngectomy rehabilitation. British Laryngological Conference, 2021.
Report
- Needle, J.J., Petchey, R.P., Benson, J., Scriven, A., Lawrenson, J. and Hilari, K. (2011). The role of allied health professionals in health promotion..
Thesis/dissertation
- Hilari, K. Assessing health-related quality of life in people with aphasia. (PhD)
Other (3)
- Morgan, S., Mulligan, K., Weir, K., Nind, M. and Hilari, K. (2024). Protocol for SEEM Study: Safe Efficient and Enjoyable Mealtimes: Creating a toolkit for families of children who need assistance with eating and drinking – an observational study.
- Morgan, S., Hilari, K., Mulligan, K., Weir, K.A. and Sparks, F. (2021). A systematic review of mealtime recommendation interventions provided to carers of school-aged children who have oropharyngeal dysphagia (PROSPERO 2021 CRD42021257596).
- Sparks, F., Hilari, K., Dipper, L., Coffey, M. and Morgan, S. (2021). A systematic review of tracheoesophageal voice therapy in post laryngectomy rehabilitation.